Dampak Stigma terhadap Kesejahteraan Psikologis Keluarga yang Merawat Orang dengan Gangguan Jiwa di Kabupaten Pamekasan

Authors

  • Willi Holis Universitas Nazhatut Thullab Al-Muafa Sampang
  • Ida Wahyuni Universitas Nazhatut Thullab Al-Muafa Sampang
  • Ahmad Zaini Arif Universitas Nazhatut Thullab Al-Muafa Sampang

DOI:

https://doi.org/10.57214/jusika.v10i1.1202

Keywords:

Family Caregivers, Mental Disorders, Psychological Well-Being, Psychosocial Support, Stigma

Abstract

Stigma toward people with mental disorders affects not only individuals living with mental illness but also the psychological well-being of family members who serve as their primary caregivers. Families often experience social rejection, discrimination, and negative stereotypes, which increase emotional and psychological burdens while reducing the quality of care they provide. This study aimed to explore the impact of stigma on the psychological well-being of families caring for people with mental disorders in Pamekasan Regency. A qualitative study using a phenomenological approach was conducted involving 11 participants selected through purposive sampling. Data were collected through in-depth interviews and analyzed using thematic analysis to identify participants' lived experiences. The findings revealed one overarching theme, namely the negative impact of stigma, which consisted of three categories: effects on family members, family relationships, and patients. Stigma generated feelings of sadness, anxiety, psychological distress, sleep disturbances, social withdrawal, family conflicts, and changes in family interactions with patients. These experiences negatively influenced caregivers’ emotional well-being and their ability to provide optimal support for family members with mental disorders. The study concludes that stigma has a substantial adverse impact on the psychological well-being of family caregivers and the quality of care provided to people with mental disorders. Therefore, comprehensive interventions focusing on stigma reduction, community education, and strengthening psychosocial support systems are essential to improve family resilience and promote better mental health outcomes.

References

Abojabel, H., & Werner, P. (2016). Exploring family stigma among caregivers of persons with Alzheimer’s disease: The experiences of Israeli-Arab caregivers. Dementia, 17(4), 447–458. https://doi.org/10.1177/1471301216673920

Asher, L., Fekadu, A., Hanlon, C., Mideksa, G., Eaton, J., Patel, V., De Silva, M., & Thornicroft, G. (2017). “I cry every day and night, I have my son tied in chains”: Physical restraint of people with schizophrenia in community settings in Ethiopia. Globalization and Health, 13, Article 47. https://doi.org/10.1186/s12992-017-0273-1

Buanasari, A., Kundre, R., & Bidjuni, H. (2018). The experience of adolescents having mentally ill parents with pasung. Enfermería Clínica, 28, 83–87. https://doi.org/10.1016/S1130-8621(18)30043-3

Chiu-Yueh, H., Lu, H.-L., & Tsai, Y.-F. (2017). Effect of family sense of coherence on internalized stigma and health-related quality of life among individuals with schizophrenia. International Journal of Mental Health Nursing, 27(6), 1742–1750. https://doi.org/10.1111/inm.12302

Corrigan, P. W., Watson, A. C., & Miller, F. E. (2006). Blame, shame, and contamination: The impact of mental illness and drug dependence stigma on family members. Journal of Family Psychology, 20(2), 239–246. https://doi.org/10.1037/0893-3200.20.2.239

Given, L. M. (Ed.). (2008). The SAGE encyclopedia of qualitative research methods. Sage Publications. https://doi.org/10.4135/9781412963909

Gonyea, J. G., Paris, R., & De Saxe Zerden, L. (2008). Adult daughters and aging mothers: The role of guilt in the experience of caregiver burden. Aging & Mental Health, 12(5), 559–567. https://doi.org/10.1080/13607860802343027

Guan, L., Liu, J., Wu, X., Chen, D., Wang, X., Ma, Y., & Yu, X. (2015). Unlocking patients with mental disorders who were in restraints at home: A national follow-up study of China’s new public mental health initiatives. PLOS ONE, 10(3), Article e0121425. https://doi.org/10.1371/journal.pone.0121425

Helena, N., & Daulima, C. (2018). Preventing pasung by mentally ill patients’ families. Enfermería Clínica, 28, 256–259. https://doi.org/10.1016/S1130-8621(18)30079-2

Huang, H., Jen, Y., & Lien, Y. (2016). Stigma experienced by caregivers of patients with schizophrenia: A qualitative study. International Journal of Nursing & Clinical Practices, 3, Article 182. https://doi.org/10.15344/2394-4978/2016/182

Karnieli-Miller, O., Perlick, D. A., Nelson, A. H., & Mattias, K. (2013). Family members of persons living with a serious mental illness: Experiences and efforts to cope with stigma. Social Psychiatry and Psychiatric Epidemiology, 48(3), 405–417. https://doi.org/10.3109/09638237.2013.779368

Koschorke, M., Padmavati, R., Kumar, S., Cohen, A., Weiss, H. A., Chatterjee, S., Pereira, J., & Thornicroft, G. (2014). Experiences of stigma and discrimination of people with schizophrenia in India. Social Science & Medicine, 123, 149–159. https://doi.org/10.1016/j.socscimed.2014.10.035

Laila, N. H., Mahendradhata, Y., & Trisnantoro, L. (2018). Perceptions about pasung (physical restraint and confinement) of schizophrenia patients: A qualitative study among family members and other key stakeholders in Bogor Regency, West Java Province, Indonesia 2017. International Journal of Mental Health Systems, 12, Article 35. https://doi.org/10.1186/s13033-018-0216-0

Larson, J. E., & Corrigan, P. W. (2008). The stigma of families with mental illness. Academic Psychiatry, 32(2), 87–91. https://doi.org/10.1176/appi.ap.32.2.87

Lazarus, R. S., & Folkman, S. (1987). Transactional theory and research on emotions and coping. European Journal of Personality, 1(3), 141–169. https://doi.org/10.1002/per.2410010304

Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Sage Publications.

Ling, Y., Watanabe, M., Sato, M., & Zhang, W. (2018). “My bitterness is deeper than the ocean”: Understanding internalized stigma from the perspectives of persons with schizophrenia and their family caregivers. International Journal of Mental Health Systems, 12, Article 14. https://doi.org/10.1186/s13033-018-0192-4

Magana, S. M., Vanusa, M., Garcia, E., & Cortez, R. (2007). Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma. Psychiatric Services, 58(3), 378–384. https://doi.org/10.1176/ps.2007.58.3.378

Minas, H., & Diatri, H. (2008). Pasung: Physical restraint and confinement of the mentally ill in the community. International Journal of Mental Health Systems, 2, Article 8. https://doi.org/10.1186/1752-4458-2-8

Paul, S., & Nadkarni, V. V. (2017). A qualitative study on family acceptance, stigma and discrimination of persons with schizophrenia in an Indian metropolis. International Social Work, 60(1), 84–99. https://doi.org/10.1177/0020872814547436

Pescosolido, B. A., Medina, T. R., Martin, J. K., & Long, J. S. (2013). The “backbone” of stigma: Identifying the global core of public prejudice associated with mental illness. American Journal of Public Health, 103(5), 853–860. https://doi.org/10.2105/AJPH.2012.301147

Polit, D. F., & Beck, C. T. (2013). Nursing research: Generating and assessing evidence for nursing practice (7th ed.). Lippincott Williams & Wilkins.

Puteh, I., Marthoenis, M., & Minas, H. (2011). Aceh free pasung: Releasing the mentally ill from physical restraint. International Journal of Mental Health Systems, 5, Article 10. https://doi.org/10.1186/1752-4458-5-10

Rezayat, F., Dehghan, N., & Jafari, H. (2018). Experience and the meaning of stigma in patients with schizophrenia spectrum disorders and their families: A qualitative study. Japan Journal of Nursing Science, 16(2), 139–148. https://doi.org/10.1111/jjns.12212

Sanden, R. L. M., Bos, A. E. R., & Stutterheim, S. E. (2015). Stigma by association among family members of people with a mental illness: A qualitative analysis. Journal of Community & Applied Social Psychology, 25(5), 400–417. https://doi.org/10.1002/casp.2221

Suryani, L. K., Lesmana, C. B. J., & Tiliopoulos, N. (2011). Treating the untreated: Applying a community-based, culturally sensitive psychiatric intervention to confined and physically restrained mentally ill individuals in Bali, Indonesia. Social Psychiatry and Psychiatric Epidemiology, 46, 140–144. https://doi.org/10.1007/s00406-011-0238-y

Tanaka, C., Tuliao, M. T., Tanaka, E., Yamashita, T., & Matsuo, H. (2018). A qualitative study on the stigma experienced by people with mental health problems and epilepsy in the Philippines. BMC Psychiatry, 18, Article 325. https://doi.org/10.1186/s12888-018-1902-9

van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy. State University of New York Press.

Varghese, M., Pereira, J., & Thornicroft, G. (2017). Experiences of stigma and discrimination faced by family caregivers of people with schizophrenia in India. Social Science & Medicine, 178, 66–77. https://doi.org/10.1016/j.socscimed.2017.01.061

Wasserman, S., De Mamani, A. W., & Suro, G. (2012). Shame and guilt/self-blame as predictors of expressed emotion in family members of patients with schizophrenia. Psychiatry Research, 196(1), 27–31. https://doi.org/10.1016/j.psychres.2011.08.009

Downloads

Published

2026-06-30

How to Cite

Willi Holis, Ida Wahyuni, & Ahmad Zaini Arif. (2026). Dampak Stigma terhadap Kesejahteraan Psikologis Keluarga yang Merawat Orang dengan Gangguan Jiwa di Kabupaten Pamekasan. Jurnal Sains Dan Kesehatan, 10(1), 480–490. https://doi.org/10.57214/jusika.v10i1.1202

Similar Articles

1 2 3 4 5 > >> 

You may also start an advanced similarity search for this article.